TY - CHAP M1 - Book, Section TI - Psychosocial Burden in Sickle Cell Disease A1 - King, Allison A. A1 - Badawy, Sherif M. A1 - Panepinto, Julie A1 - Anie, Kofi A1 - Jonassaint, Charles A1 - Treadwell, Marsha A2 - Gladwin, Mark T. A2 - Kato, Gregory J. A2 - Novelli, Enrico M. Y1 - 2021 N1 - T2 - Sickle Cell Disease AB - Sickle cell disease (SCD) has been described in Africa for centuries. Characteristics of the disease have become incorporated into local languages, impacting cultural understanding of the course and symptomology of SCD. For example, the prominence of sickle cell pain is the basis upon which SCD has been named in certain Ghanaian cultures. These names—chwechweechwe (“gnawing”; Ga), nuidudui (“biting”; Ewe), and ahotutuo (“body pinching”; Twi)—reflect the lived experiences of individuals affected by the disease.1 Other names—onye kye ba (“s/he is not one who would live”; Twi)—capture the expectation of early mortality. Still others—ogbanje (“child who comes and goes”; Igbo) and sika be sa (“money will finish”; Twi)—reflect the emotional and financial impact on the family.2 SN - PB - McGraw-Hill Education CY - New York, NY Y2 - 2024/10/04 UR - hemonc.mhmedical.com/content.aspx?aid=1179345474 ER -