RT Book, Section
A1 King, Allison A.
A1 Badawy, Sherif M.
A1 Panepinto, Julie
A1 Anie, Kofi
A1 Jonassaint, Charles
A1 Treadwell, Marsha
A2 Gladwin, Mark T.
A2 Kato, Gregory J.
A2 Novelli, Enrico M.
SR Print(0)
ID 1179345474
T1 Psychosocial Burden in Sickle Cell Disease
T2 Sickle Cell Disease
YR 2021
FD 2021
PB McGraw-Hill Education
PP New York, NY
SN 9781260458596
LK hemonc.mhmedical.com/content.aspx?aid=1179345474
RD 2024/10/04
AB Sickle  cell  disease  (SCD)  has  been  described  in  Africa  for  centuries.  Characteristics  of  the  disease  have  become  incorporated  into  local  languages,  impacting  cultural  understanding  of  the  course  and  symptomology  of  SCD.  For  example,  the  prominence  of  sickle  cell  pain  is  the  basis  upon  which  SCD  has  been  named  in  certain  Ghanaian  cultures.  These  names—chwechweechwe  (“gnawing”;  Ga),  nuidudui  (“biting”;  Ewe),  and  ahotutuo  (“body  pinching”;  Twi)—reflect  the  lived  experiences  of  individuals  affected  by  the  disease.1  Other  names—onye  kye  ba  (“s/he  is  not  one  who  would  live”;  Twi)—capture  the  expectation  of  early  mortality.  Still  others—ogbanje  (“child  who  comes  and  goes”;  Igbo)  and  sika  be  sa  (“money  will  finish”;  Twi)—reflect  the  emotional  and  financial  impact  on  the  family.2